RogCon founders from left to right: Kelley Dalby, Dr. Steven Petrou and Alex Nemiroff.
RogCon is a biotechnology company focused on discovering and developing novel therapeutics for children suffering from SCN2A mutations, where no solutions currently exist. The Company was founded by two parents of children affected by SCN2A mutations, Alex Nemiroff (CEO) and Kelley Dalby (SVP), and Dr. Steven Petrou (CSO), a renowned neuroscientist specializing in genetic epilepsy.
Underwhelmed at the current standard of care and grim prognosis, the Founders set out to amass the world’s leading experts in epilepsy research and drug development to support and advance the Company’s efforts to identify and bring to market new disease-modifying ways to treat SCN2A disease. This led to partnerships with key biopharma and academic institutions, including a collaboration with Ionis Pharmaceuticals, Inc. [Nasdaq: IONS] to harness their expertise in antisense oligonucleotide drug discovery.
Today, the RogCon team consists of dedicated scientists, researchers and professionals, advancing several new treatments to market and all guided by the singular goal of changing the lives of children and families impacted by mutations in SCN2A.
In 2016, Ionis Pharmaceuticals (“Ionis”) [NASDAQ: IONS] and RogCon began a collaboration with the goal of developing new disease-modifying antisense oligonucleotide drugs to treat SCN2A disorders.
Our co-founder, Dr. Steven Petrou, leads The Florey Institute of Neuroscience and Mental Health, one of the largest and most highly respected brain research centers, and the leading institute in the world for genetic epilepsy research.
Dr. Ingrid Scheffer, AO, MBBS, Ph.D, FRACP, FAA, FRS
Florey Institute of Neuroscience and Mental Health, University of Melbourne, Professor of Neurology
Dr. Annapurna Poduri, M.D., MPH
Director, Epilepsy Genetics, Boston Children’s Hospital Professors of Neurology, Harvard University Medical School
Dr. Heather Olson, M.D.
Assistant in Neurology, Boston Children’s Hospital Instructor of Neurology, Harvard Medical School
Dr. Katherine Howell, MBBS (Hon), Ph.D, FRACP
Neurologist at Royal Children’s Hospital, Murdoch Children’s Research Institute, University of Melbourne
Dr. Rikke Møller
Head of the Epilepsy Genetics and Personalized Medicine Unit at the Danish Epilepsy Center, Filadelfia
Dr. Maria Roberta Cilio, M.D., Ph. D
Director of Research, University of California San Francisco Epilepsy Center Professor of Neurology, UCSF Medical School
Dr. Theodore Cummins, Ph.D
Chair of Biology, Stark Neurosciences Institute, Indiana University
Dr. Holger Lerche
Neurologist, Hertie Institute for Clinical Brain Research University Children’s Hospital, Tubingen, Germany
Dr. Sam Berkovic, AC, FAA FRACP, FRS
Neurologist, University of Melbourne Department of Medicine Director of the Epilepsy Research Center at Austin Health
Dr. Markus Wolff
Neurologist at University Children’s Hospital Tubingen, Department of Neuropediatrics, Developmental Neurology, Social Pediatrics
We were always told that the moment you see your child for the first time is surreal, a day you will always remember. That first day is forever ingrained in my and my wife’s minds, but for a different reason. Our delivery, like the pregnancy, was a breeze, and we were staring in awe at our first child Roger in the early hours of the morning on February 1, 2014. After nursing and spending a few minutes alone with me and my wife, Roger was taken away for a routine check and we had a moment to ourselves, giddy at the prospect of being first time parents and embarking on this new chapter of life.”
Connor was born and labeled healthy, and we were sent home from the hospital. We were so excited that we were able to give our older son Chase a brother and a best friend for life. But it was short-lived. A few weeks after birth, he cried often, rarely slept and had a lot of gastrointestinal issues and feeding difficulties. At this point I naively thought that when a person was ill, he went to the doctor, received a diagnosis, took a medication and got better. I thought diseases were cured and people recovered. I was in for the shock of my life having Connor as my son.